Expert consensus standards and recommendations for neurodevelopmental and neurocognitive surveillance, screening, and evaluation across the lifespan in individuals with sickle cell disease (SCD), developed by the National Alliance of Sickle Cell Centers Neurocognitive Workgroup.
The workgroup produced consensus-based standards, an accompanying clinical algorithm, and supplemental implementation guidance for identifying and supporting neurodevelopmental and neurocognitive difficulties in SCD across the lifespan; no quantitative outcome data are reported.
Recommendations are based on expert consensus rather than primary clinical trial evidence, which limits the strength of the evidence base. No sample size or comparative outcomes are reported in this executive summary format.
Clinicians caring for patients with SCD should implement structured neurodevelopmental and neurocognitive surveillance and screening at regular intervals across the lifespan, following the published algorithm. Early identification and referral for support are emphasized as key goals.
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