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“I’m afraid to eat a piece of toast”: The Lived Experience of Balancing Eating and Health Behaviors in Adults with Chronic Pain
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“I’m afraid to eat a piece of toast”: The Lived Experience of Balancing Eating and Health Behaviors in Adults with Chronic Pain

Journal of Clinical Psychology in Medical Settings·August 29Open Access
Psychology, ClinicalLimited evidenceChronic PainDisordered EatingEhlers-Danlos SyndromeFibromyalgiaQualitative Study (Reflexive Thematic Analysis)Mixed

Summary

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What was studied

This qualitative study explored the lived experience of eating problems in 16 adults with complex chronic pain (15 women, age 21–69, all White non-Hispanic, cisgender) recruited from a multidisciplinary academic pain clinic; interviews were analyzed using Reflexive Thematic Analysis.

Key findings

Five core themes emerged: (1) fear-driven unpredictability around food triggers; (2) vicious cycles linking pain, medication side effects, mood, and maladaptive eating; (3) disrupted body image and identity; (4) social isolation tied to dietary restrictions; and (5) practical barriers—financial, physical, and logistical—to obtaining and preparing food. Eating difficulties extended well beyond standard eating disorder criteria.

Study limitations

- Sample was small (n=16), nearly all female, exclusively White non-Hispanic, and English-speaking—severely limiting generalizability. - Treatment-seeking sample from a single specialty pain clinic, not representative of community populations. - Qualitative design does not allow causal inference or prevalence estimates.

Clinical implications

Screen chronic pain patients for the full range of eating difficulties—including fear-based restriction, comfort eating, and medication-related appetite changes—not just formal eating disorder diagnoses. Replace weight-centric advice with individualized, biopsychosocial approaches that address fear-avoidance, decision fatigue, social isolation, and practical food-access barriers.

Caveats

  • All participants were drawn from a specialty multidisciplinary pain clinic, making findings less applicable to community-dwelling or primary care chronic pain populations.
  • One self-cited reference ('Anonymized for Review') is referenced in the text but not fully identified, suggesting unpublished or masked companion data was used to contextualize findings.
  • Sample is almost entirely female (15/16) and exclusively White non-Hispanic, which substantially limits applicability to other demographic groups.

Related Questions

Explore related topics

How should I screen chronic pain patients for eating problems beyond standard eating disorder criteria?What interventions address fear-avoidance eating behaviors in adults with chronic pain?How does chronic pain contribute to social isolation and disordered eating in clinical practice?

Publication Details

Year
2026
Journal
Journal of Clinical Psychology in Medical Settings
Sample Size
n=16
Source
View article
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